My wife was diagnosed with Severe Aplastic Anemia in September of 2015. The following are my update letters to my family and friends. It is not my instinct to blog about anything, but I know how scary this diagnosis is, and how hard it is to find information. So, I’ve decided to post all of my updates to help other AA patients and their families.
Many of these are updates were written on the fly in the hospital on my iPhone so excuse everything that’s stupid and wrong.
I have not changed the updates for this blog.
That means I swear. Often. Don’t read if that offends you.
I recommend reading in chronological order, button to top.
At the end of the day, for anyone with Aplastic Anemia, the key is to get to a doctor who is a specialist. That is essential. My info may not always be perfect. In some places I can see in early posts the things I just didn’t understand. I have educated myself quite a bit about this disease, but I am not a doctor, nor do I play one on TV. So don’t actually listen to me!
This is a blog about Aplastic Anemia. It’s also about how to be an advocate. And how to face a life changing diagnosis with your loved one.
Lisa = patient
Chris = me
Theo = 9 year old, ours
Rudy = dog